Did you know...When individuals are diagnosed with cancer, the families of these individuals request the doctors and nurses not to share this information with their family member. Therefore, these cancer patients have no idea why they are recieving radiation therapy. All they know is that they are sick and they are getting treatment for their illness. Most of the radiation departments in Karachi do not display the word "cancer" anywhere in any language. In the western, withholding of medical information is considered a violation of our basic rights and rightly so. We do have the right to know what type of illness we are battling with. Afterall, it is our body. Also, it is against the medical oath that all doctors take before practicing medicine. The oath to practice ethically and to share medical information with their patients, which includes all options for treatment, their benefits and their side effects. This violation is enough to suspend a doctor's medical practice.
However, in Pakistan, the word "cancer" is quickly associated with another word....death. Families feel that if patients know they have cancer, then they will lose all hope to live and hence, lose the will to fight. And we know that if you lose the will to live then there is a possibility that no amount of treatment will work. So what would be considered a violation of our human rights and a violation against the medical oath is actually working for the benefit of these cancer patients. If you think about it, doctors are also ethically obliged to protect their patients in any way possible and to work for their betterment. So if you dont tell someone they have cancer because you feel that if you do, they will see no hope for the future and will not work towards their treatment, then is that considered ethically appropriate? Is the doctor protecting the patient?
We may also be thinking that families have no right to interfere in their family member's life. Why would you withhold something that could greatly affect someone's life? But isn't that also the product of an individualistic society? Are we only concerned with ourselves that we do not realize the impact of our actions and behaviours on others? Our families only want the best for us....their intentions cannot be that hurtful.....
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Hi Shazmah, wow! What an incredible ethical dilemma the health care professionals are in. I wonder if there are any studies done where information is shared with the family and the client vs. kept "secret" from the client. Are we really catering to the minds of individuals in the right way? I wonder, if there are enough resources to support the families and the client through this journey of cancer? Is there a need to change the education system of informing clients about their diseases?
ReplyDeleteI came across many studies that all point out that involving clients in their interventions, increases the outcome of the plan and also empowers the client to make informed decisions in regards to their body and health. There are visual sessions and interactions with survivors that give hope and also the opportunity for volunteers to participate and enhance their healing process. Families can share what helped and what did not. Support Groups like we call it here, are huge resources in treatment.
I understand the limitations of culture however like you say just because you live in Pakistan or Canada does not mean that one has to let go of doing what is right!
Regards
Almas Bandeali (Suhair's Mum)
Thank you so much Almas for sharing your thoughts!
ReplyDeleteThese issues do need to be explored a bit more because this is not a clear cut situation. It is a complex situation where all veneus need to be explored.
I really appreciated this post, Shazmah. Illness is dealt with in very different and interesting ways around the world... many diseases/illnesses that we diagnose in the Western world may not even exist/given a name in another part of the world...I suppose it shouldn't be too surprising that the way illnesses are perceived and approached may also differ drastically..yet I was still surprised to hear that the diagnosis is not shared with the patient.. in a way this can be comforting, since the family chooses to take the burden upon themselves, which could spare the family member great emotional stress?
ReplyDeleteI am sure this topic has the potential to turn into a hot debate..hmm it may even be relevant for our STEP-BUI classes!!
Thanks for posting, Shaz, loving your site! :)